Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Thursday, February 16, 2017
Hundred People Search
We have added a new HPSer to the patient registry. This puts us at 70 to go for this year's Hundred People Search initiative. We only have three weeks to go for the year. If you know an HPSer who is not registered with the HPS Network, please ask them to register with us - no matter where in the world they live. It is free and it helps promote a cure for all of us!